[THREAD] I want to talk a little bit about how people who are struggling with their mental health may appear to the outside world and why some things contribute to stigma even when we are not aware of them. I often complaints from families or partners.

They would say this person no longer listens, is absent, always on their own and may take it personally. Let’s go through why that happens and what explanations we have for these shifts. First of all, social withdrawal is one of the main symptoms of many forms of psych issues.
Social situations (yes that includes family and loved ones) takes a lot of energy. We don’t notice that for the most part when we are doing well but when we start struggling, every word, listening to conversations, etc...takes so much energy and can be hard to maintain.
This is why they may get irritated and lash out. It is because the energy is gone and they can no longer keep up the mask of normalcy. It is important to respect their space and boundaries while they are going through this hard time. Don’t force them to do things they don’t want.
Also, if you talk to someone who is struggling with their mental health, they may seem absent or like they are not caring at all. Well, from the perspective of the person who is struggling, their concentration is on their thoughts, their bodies, checking for panic attacks.
There is no concentration left to give to our environment. This is why memory loss happens too (in part). Because they are not connected to their environment, they don’t remember much of what’s going on around them. Also, it may seem that they have no compassion.
This is further from the truth. Their emotional capacity is not working well right now, they are going through a lot. This is going to be one of the hardest periods in their life. It is important to lower expectations and give them the support they need to recover.
Someone who may be very compassionate may not have that ability anymore (temporarily). That doesn’t mean they are bad people, they are just focusing inwards because of what they are going through. It is important to remember these factors.
Again, these are not excuses. This is just how mental health issues operate. It is not something they can control. So please be patient if a friend or loved one is going through this. Don’t take it personally, they are going through a crisis and making them feel guilty is bad!

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Let's talk honestly about "informed consent."
Someone with decades of training gives someone with none advice usually packed into 1-3 mins. Huge amount is based on trust. Huge potential for bias built in. But also there is no obligation to provide real alternative options.


I am classified as 'gifted' (obnoxious and ableist term). I mention because of what I am about to say. You all know that I was an ambulatory wheelchair user previously - could stand - but contractures have ended that. When I pleaded for physio, turned down. But did you know...

I recently was chatting with a doctor I know and explaining what happened and the day the physiatrist told me it was too late and nothing could be done. The doctor asked if I'd like one of her friends/colleagues to give second opinion. I said yes please! So...

She said can you send me MRI and other imaging they did to determine it wasn't possible to address your contractures.

Me: What?
Dr.: They did a MRI first before deciding right?
Me: No
Dr: What did they do??!
Me: Examined me for 2 minutes.
Dr: I am very angry rn. Can't talk.

My point is you don't even know if you are making "informed" decisions because the only source of information you have is the person who has already decided what they think you should do. And may I remind you of a word called 'compliance.'

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