BC HEALTH
Saved by @WebbDarrrel

Autistic behaviours that are generally discriminated against, despite being harmless and just how we are.

A thread🧵

 1. Stimming - repetitive physical movement to help regulate our stress levels. They feel nice and are really helpful but people seem to hate to see it. #autism
2. No eye contact. We generally find this too intimate and intense, and will avoid. It can even cause pain if forced. But people don't trust us even though we inform them we're autistic. #autism
3. Sitting in 'odd' positions. We're often very bendable - remember Ehlers-Danlos syndrome is a common comorbidity - and loads of feel more comfortable in slightly contorted positions. People always comment 'you can't be comfy like that'.

Yes. Yes I can. #autism
4. Stammering when excited. We can get so passionate about some subjects that we struggle to get the words out as they all get caught in the annoying bottleneck of actually having to leave our mouths. But it irritates people, makes them assume we're somehow lesser. #autism
5. Facial movements and stretches. Part of stimming really, as its generally a comfort or stress release mechanism, but can be viewed derogatively as 'twitching' and often a source of mockery. But it's just a natural, harmless action. #autism
6. Meltdown. There's nothing abnormal about having a meltdown - all humans can. It's just #autistic stress levels are so high they tend to happen more frequently. But they're seen as a failing of us, rather than a failing of our surroundings, which is more accurate. #autism
7. Rigid routine. Many of us like this as it removes possible stressors from the day, keeping things nice and calm. But some people seem to view it as weird and bad, for some reason, even though its a perfectly sound way of managing our stress. #autism
8. Organising/lining up/collecting things. It's really only because autistic folk seem capable of being interested in collecting *anything* that there's an issue. As if it's normal to collect football shirts but somehow bizarre and evil to collect pink socks. #autism
9. Flat affect. Some autistic people show very little emotion on their faces, despite still feeling them internally. This is generally taken tremendously badly by neurotypical people around them, even though its a well documented and perfectly natural trait. #autism
10. Missing cues to speak in a conversation. A natural and very common part of what autism actually is and yet even folk who know autistic people can be highly offended when we mess up and interrupt or take too long to speak.
As you can see from this short list, when you're actively vilified for simply living out your existence, because your behaviours don't properly confirm, it can be so unpleasant and miserable. This is why we need to raise understanding that these behaviours are OK.
If we don't, autistic people will continue to feel aliens and unfairly condemned for things outside of their control. And as you can see, none of these things actually cause any harm. Live and let live, please. Is it too much to ask?
Leaving this here just in case you'd like to support... https://t.co/qonxXX3C91

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Pete Wharmby
Pete Wharmby
@commaficionado
30 things you can do that might help #autistic people in your lives.

A thread. Please read and share widely, and add to it as you see fit.

#autism #autistic

1. Let us decompress in quiet areas when we need to. Our desire to be alone is not judgement on you, it's simple self preservation. #autism

2. If you need us to do something, give us very clear, unambiguous instruction. Don't feel like you're being rude doing this, but don't sound irritated or patronising! #autism

3. Do not expect us to react to things in a way you would expect. That way lies disappointment. We often show our emotions in very different ways to what you might expect. #autism

4. Don't assume we aren't capable of thought and feeling if we're non-verbal. Don't assume we're incapable of communicating in other ways either. #autism
LIFE
Pete 'stay' Wharmby 'the fireplace'
Pete 'stay' Wharmby 't...
@commaficionado
How to help the #autistic people in your life get through Christmas - a practical thread of advice.

Please read and share!

(This is based on my own experiences of being autistic)

#autism #christmas

1. Give #autistic people an easy escape route they know they can take without judgement - knowing you can dash off to recharge without being questioned can help so much!

2. Don't play Christmas music really loudly around the house. No one needs that anyway but if you must, make it not too intrusive as it can be difficult for #autistic people to handle. Christmas music is *so* 'busy'!

3. Don't expect clear and unambiguous response to Christmas presents when opened. Many #autistic people struggle to show the appropriate emotional reaction, and are also terrified of making you feel bad. We show appreciation in our own way.

4. Don't forget #autistic friends and relatives may not be as excited about meeting up with family members as you are. There is likely a lot of anxiety there, especially this year. Be mindful of this and don't force it.
CULTURE
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Pete Wharmby
Pete Wharmby
@commaficionado
Once again I'm reminded that every action has an equal and opposite reaction. The recent push by a large number of autistic people to 'own' their diagnosis and try to raise acceptance and dispel harmful myths has kicked up a minority of autistic people to fight against this.

This may seem bizarre - who fights against improved acceptance? - but actually has clear roots in the ongoing culture war the West seems engaged in. The identity positive autistic movement, of which I am a part, is viewed by some as another manifestation of 'wokeness'.

This is the right-wing definition of 'wokeness', of course - ie a modern equivalent of the pejorative take on political correctness, but it's definitely at the core of this 'neurorealist' movement - the idea the autistic community is being hijacked by 'woke lefties'.

They believe that the push for acceptance of neurodiversity and rejection of the medicalisation of autism is misguided and drawing attention away from those autistic people who, in their view, need more help and intervention.

The trouble is, this view is pretty much baseless. Firstly, there is little evidence that autistic advocates who push for acceptance are in any way harming autistic people who require more help and support. Second, the view effectively silences those of us who are able to share.
HEALTH
Pete Wharmby
Pete Wharmby
@commaficionado
Things You Need to Know About Autism - a thread for sharing.

I try to raise awareness, understanding and acceptance of #autistic people. Have a read and hopefully it will help.

#thread #autism

1. Autism has always existed, as far as we can tell. Any increase in the number of autistic people is due to better diagnosis and growing population. There are historic figures who display many autistic traits, such as Isaac Newton. #autism

2. Autism is not an illness or disease. It cannot be caught, nor does it appear to spontaneously happen. You are born autistic and you will die autistic - it is not 'curable'. #autism

3. Autistic people do not lack empathy, nor are we emotionless robots. We often struggle to communicate emotion, and we can have alexithymia, making identification of emotions hard, though. #autism

4. Autism affects the entire demographic - doesn't matter your gender, sexuality, age, class, skin colour, culture. Autism is a human condition. #autism
AUTISM
Pete 'stay' Wharmby 'the fireplace'
Pete 'stay' Wharmby 't...
@commaficionado
Why do #autistic students get excluded so frequently from school?

Some thoughts, based on my own experiences. If we have an understanding of the 'why', it's easier to address the results.

Please read and share! /1

Autistic students often find themselves being punished more than average at school. Frequently this can escalate to temporary exclusion and similar 'punishments'. Are autistic students generally just more naughty? Of course not. So what's the deal? /2

Everything about the fundamentals of a school day is designed around neurotypical children. Most school day elements are also very old, and have been around since long before people became more 'autism aware'. /3

What we see as the core experience of doing subjects for around an hour, before moving to the next subject, between the ages of 5 and 18 dates back *decades*. So where do autistic students fit in? /4

Well, they don't. Students with an autistic or ADHD neurotype quite simply do not slot into this structure. The only way they can is by essentially squashing their own needs in order to fit in with the majority. If they can't do this? That's where the 'punishments' come in. /5
SCHOOL

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Aureliano Stingi
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Controversial 3D. Probably none of you knows about Leber congenital amaurosis type 10, congenital blindness that affects 3 out of 100,000 children, condemning them to blindness for life. The only possible treatment is through gene therapy. 1/n


Thanks to Crispr-CAS9 technology we MODIFY the defective gene inside the patient eye ( they directly inject the treatment into the eye). Before CRISPR the treatment was based on Adenovirus carrying the correct form of the gene

In both cases, we MODIFY the patient DNA and that's the only way (today) to treat this disease. LCA10 is not the only genetic disease affecting kids unfortunately the list is long and the variety of diseases is terrifying.

Now think about a parent with a kid with a genetic disease, he/she would try and do anything to save him/her. ANYTHING and they would take some RISKS, gene therapy was a risk at the beginning, and any new experimental treatment shares a percentage of risk. 4/n

Now we come to #COVID19 and #vaccines. The new RNA vaccines are a HUGE scientific breakthrough, that may open new amazing therapeutic paths. And like ANY other human activity share a risk.
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Jon Liebling
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New Cannabis Based Menu for Chao Phraya Hospital patients (service being rolled out to other hospitals too)
"This cannabis special menu is bringing different parts of the cannabis plant to use with leaves to cook as ingredients in food" #cannabis #Thailand


Whilst patients in the UK are still being denied with almost no progress with #NHS Amazing to see how much progress is being made with #cannabis as #medicine in #Thailand is the same 2 year period:

A Thread: 1/10 #Thailand allowed #cannabis #medicine in Jan 2019, 2 months after the UK.
NOW:
Is approved for 160+ conditions (everyone!)
Village doctors, clinics and hospitals can supply approved products or grow and produce their own, from nearly 100 approved formulas

2/10 - Average monthly prescription cost is £20-£30.
Educational programs started for the Medical Profession within 3 months, for many others at 6 months and school kids after a year. (Google Dr Ganja - see photo)


3/10 - Shortly they will launch a new policy for any individual or collectives to grow #cannabis for #medicine for themselves and any surplus material can be sold to the government for use in centralised production.
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Noah Sasson
Noah Sasson
@Noahsasson
Before we get too far into 2021, I thought I’d write a thread recapping some of the research that came out of my lab in 2020. Most of this work was led by my talented team of graduate students, Kerrianne Morrison, @kmdebrabander, and @DesiRJones.

Back in January, a news story was published about Kerrianne’s study showing improved social interaction outcomes for autistic adults when paired with another autistic partner.

A detailed thread about the study and a link to the paper can be found here (feel free to DM me your email address if you’d like a copy of the full paper for this study or any of our studies):


Another paper published early in 2020 (it appeared a few months earlier online) showed that traditional standalone tasks of social cognition are less predictive of functional and social skills among autistic adults than commonly assumed in autism research.


Next, @kmdebrabander led and published an innovative study about how well autistic and non-autistic adults can predict their own cognitive and social cognitive performance.
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David Fisman
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@DFisman
I do want to talk a bit about connections, conflicts and information during a pandemic. Since @fordnation insinuated I have COI which I don't, let's take a look at a single instance where @fordnation and Hospital for Sick Children are both making interesting decisions.

Both share a powerful supporter in Peter Gilgan, who has been a great supporter of Sickkids

But his company, Mattamy Homes, has also substantially bankrolled Ontario Proud, which I have reason to believe pushed the Postmedia hit on my reputation.


Sickkids and Mattamy have very close ties. Here is Mary Federau, a longtime Sickkids exec who has moved to Mattamy but remains involved with the Sickkids foundation:


Mary's bio is too modest. It looks as though it has been scrubbed a bit over the last 72 hours. Here's the google cache from Jan 25:
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F. Perry Wilson, MD MSCE
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Folks, we need to talk about this Vitamin D trial. I have no stake in this game - take Vitamin D if you want but this pre-print is super sus.

The paper is presented as a randomized trial of vitamin D supplementation in hospitalized patients with COVID. Interesting and important question! And the results appear dramatic:


If true, this would be one of (if not THE most) effective treatments for COVID. But there are problems...

The first clue something is up is that the randomized groups aren't the same size:


It took me a while to figure out why this was, then I saw in the text that INDIVIDUALS were not randomized, WARDS in the hospital were.
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which give an ethereal atmosphere when switched on. The steps representthe twelve signs of the zodiac and when one steps over them to reach thesanctum sanctorum all the doshas pertaining to the horoscope are cleared onceand for all..4/n


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Some thoughts on episode 53 of #Hercai

Love,that is not real,has no passion. Its fire turns into embers, it doesn’t not smell. The day, the night, the moon&year burn without sun, light, comfort&sleep.
Ömer Hayyam

#Reyyan #Miran #ReyMir #EbruŞahin #AkınAkınözü
#HercaiThoughts


1
PRAISE
The praise in this episode goes foremost to Ebru because she portrayed Reyyan so realistically like a woman who truly lost her unborn child. I was in awe and pain watching her along the episode, all her breakdowns and tears were so real.
#Hercai

2
Of course also Akın took his part and did his part masterfully, but he rightfully was the one who stood aside in this specific episode that needed to be about Reyyan’s pain and thus concentrated on Ebru.
#Hercai

3
And last but not least, if I say thank you to something that B gave us this year, then it’s to have Ali as our director. Also in this episode we saw the artistic eye behind every shot and I loved it.
#Hercai

4
OVERALL COMMENT
I don’t know who wrote ep. 52 but ep. 53 was going strong once more on symbols: roses, stones, fire and trees were incorporated and especially the ReyMir dialogues were written very well. I truly loved every ReyMir scene.
So let's get into it.
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