BC HEALTH
Saved by @Alex1Powell

I don’t know how to make the world understand what it’s like to live with longterm illness. To wake up each day never knowing if you’ll be ok, to have your dreams and plans constantly disrupted. What it’s like to never feel rested and to always be in pain

 I have EDS. 79.5% of people with Ehlers-Danlos have significant fatigue (Anne Krahe, 2017, Systemic Manifestations and Health- Related Quality of Life in Joint Hypermobility Syndrome/Ehlers- Danlos Syndrome-Hypermobility Type)
“Chronic pain has been documented to affect up to 100% of individuals with a diagnosis of JHS/EDS-HT, while 85.7% report experiencing progressively worsening pain.” (Ibid.)
I am just...so sorry for all the people who survive COVID-19 trying to find condition management that doesn’t exist or is unaffordable. I’m so angry at all the hooks and lures set out by shills and charlatans that’ll cause so much iatrogenic harm
I want you to know that you won’t be the same person after you become chronically ill. It changes you and forces you to find new ways to live. Embrace that transition but know it’s ok to grieve for what you’ve lost
Just because someone is family doesn’t mean they’ll be a trusty support when you’re ill. Find the ppl you can rely on.
Tell people about how you feel. They’re not psychics or mind readers. Most ppl won’t know how badly you’re hurting unless you let them know
Minimise the things you can no longer cope with. Let it go
Find the things that help you feel better or help you cope: consider trying to learn ways to manage chronic illness a painful budget adventure. Try new things. Aquatherapy. Meditation. New meds. New doctors. Don’t go broke doing it. Plan rest days in among your “adventure days.”
If something isn’t working or is making things worse, stop
Doctors are supposed to be professionals, not gods or masters. Always be polite but consider saying “thank you for your advice,” leaving and never returning if a doctor gives bad advice or behaves inappropriately
Get a routine. Write it down. Track you meds and pain
Use the kindest voice you have on yourself to help yourself get through the hard times (like when you have to stand up first thing in the morning)
It’s ok to let some stuff slide when you’re unwell but institute a “redline.” Mine is stuff like “garbage must go out when necessary, dishes must not sit in the sink for more than 24 hrs”
Prioritise the stuff you enjoy and that reduces your pain levels
It’s ok to say no to doing stuff when you’re not well enough
And if it promises a miracle cure and costs the world, get a second opinion before paying up. Try to find some actual irl ppl the proposed treatment worked for. Check the side effects as well
Collectively, the best thing you can do to long term help yourself and others is to lobby together for better specialist care. Support groups aren’t enough.
I know you’re tired and it hurts but you’re either going to have to win the lottery or engineer your own healthcare (eg. @4ThievesVinegar) or go without unless something radically changes. Get political. #LongCovid

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Dr. Adam H. Domby
Dr. Adam H. Domby
@AdamHDomby
Now you know I love to sh-t in Harvard. But I also like accuracy. So I decided to go look at Harvard’s catalog to see its lack of military history that this article describes (they only teach history of pets it claims) and what I found shocked me! Shocked me! A thread: 1/


First off, Harvard students literally have multiple sections of military history that they can take listed. (It appears these ones are taught at MIT, so they might have to walk down the street for these) but... 2/


Say they want to stay on campus...they can only take numerous classes on war and diplomacy...3/


They have an entire class on Yalta. That’s right. An entire class on Yalta. 4/


But wait! There is more! They can take the British Empire, The Fall of the Roman Empire for those wanting traditional topics... 5/
HEALTH
Noah Sasson
Noah Sasson
@Noahsasson
Before we get too far into 2021, I thought I’d write a thread recapping some of the research that came out of my lab in 2020. Most of this work was led by my talented team of graduate students, Kerrianne Morrison, @kmdebrabander, and @DesiRJones.

Back in January, a news story was published about Kerrianne’s study showing improved social interaction outcomes for autistic adults when paired with another autistic partner.

A detailed thread about the study and a link to the paper can be found here (feel free to DM me your email address if you’d like a copy of the full paper for this study or any of our studies):


Another paper published early in 2020 (it appeared a few months earlier online) showed that traditional standalone tasks of social cognition are less predictive of functional and social skills among autistic adults than commonly assumed in autism research.


Next, @kmdebrabander led and published an innovative study about how well autistic and non-autistic adults can predict their own cognitive and social cognitive performance.
HEALTH
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Dinesh S. Thakur
Dinesh S. Thakur
@d_s_thakur
This is a limited point about availability of efficacy data for vaccines under development in the context of the approval for CovidShield and Covaxin in India.

There have been many so-called experts on the idiotbox opining about apparent availability of P III data which 1/n

2/n apparently the SEC had access to based on which it "supposedly" approved Covaxin. Another argument that is prevalent is other regulators (US FDA and MHRA) also approved vaccines based on P II data alone. Let me give you a few facts so that you can make your own decision.

3/n The protocols for both mRNA vaccines are publicly available. You can check. Both protocols *define* when the interim analysis will be done. This is not subjective. They clearly define how many infections need to be documented before the Data Safety Monitoring Board meets.

4/n Find the protocols for the bridging study for CovidShield and Covaxin and look for a similar milestone.

Here is one set of efficacy data post the interim analysis of a mRNA vaccine.

Source: https://t.co/BAPnP3PxEb


5/n This data was analyzed post the interim analysis where the blind was broken by the DSMB. Now ask yourself this question:
How does the SEC, or the sponsor of these studies, or the experts who are offering their opinion liberally on the idiotbox know what the efficacy is
HEALTH
Cory Doctorow #BLM
Cory Doctorow #BLM
@doctorow
"Public health" isn't just about vaccinations, clinics and urgent care: it's a holistic discipline that encompasses all the contributors to health outcomes, which include things like housing, employment, transportation, pollution and more.

1/


A new working paper from @nberpubs estimates the number of US covid deaths that could have been prevented with a coherent, effective eviction moratorium and a ban on utility cutoffs:

The paper, written by a multidisciplinary group of Duke researchers from medicine and economics, found that housing precarity (a risk of losing your home) drove risky behavior that increased the spread of the disease and the resulting deaths.

3/

For example, it forced people to double-up on lodgings, making social distancing impossible, to say nothing of self-isolating after an exposure. It also drove people to tolerate high-risk workplace conditions, including illegal conditions.

4/

The authors used regression techniques to control for confounding variables, and used like-for-like counties with different utility and eviction policies to estimate the effect that these had on infection rates.

5/
HEALTH
\u2744\ufe0fI'm A Fuckin' Princess\u2744\ufe0f
❄️I'm A Fuckin' Prince...
@Just_ReneaR
I'm not pro-murdering babies.
I'm pro-Becky who found out at her 20 week anatomy scan that the infant she had been so excited to bring into this world had developed without life sustaining organs.
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First update to https://t.co/lDdqjtKTZL since the challenge ended – Medium links!! Go add your Medium profile now 👀📝 (thanks @diannamallen for the suggestion 😁)


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Most software founders, particularly in B2B, need to get radically better at sales. @Steli , who is the best person for explaining the scrappy stages in the beginning and then building out a team with scripts and processes, wrote a guide to:

For technical founders it is irrationally, obscenely hard to reverse years of programming (ba dum bum) that sales is a value-destroying activity. Sales is CLEARLY a value-creating activity, contingent on you have a value-creating product.

The world will not drop what they are doing to adopt your work. This is particularly true in B2B, where simply building a better mousetrap won't overcome the activation energy required to get people with additional non-mice problems to prioritize changing mousetraps today.

This is very non-obvious for founders because founders are not often people who *want* to be sold to. We often come from a background where trying out tools is a bit of a fun hobby. We like looking at all the options, making charts, and ripping out partially complete tests.

"This week I unsuccessfully trialed four software options for automating that thing that has been killing us. Our actual production process remains the same as last week. Don't worry; this was a great use of time." is not a thing you want to write in a progress report to manager.
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Chris Herd
Chris Herd
@chris_herd
The 2020s will be known as the Remote Work decade

A few predictions of what is likely to emerge

[ a thread ] 💻🏠🌍

🏦Third Space: Office and Working from Home will be joined by somewhere close by that a number of people will use

Supermarkets or local bank branches should emerge as a convenient ubiquitous location option – if they are smart

⏰Asynchronous Work: Offices are instantaneous gratification distraction factories where synchronous work makes it impossible to get stuff done

Tools that enable asynchronous work are the most important thing globally remote teams need. A lot of startups will try to tackle this

⚽️Hobbie Renaissance: Remote working will lead to a rise in people participating in hobbies and activities which link them to people in their local community

This will lead to deeper, more meaningful relationships which overcome societal issues of loneliness and issolation

🚜Rural Living: World-class people will move to smaller cities, have a lower cost of living & higher quality of life

These regions must innovate quickly to attract that wealth. Better schools, faster internet connections are a must
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@V_Shuddhi
The first ever world map was sketched thousands of years ago by Indian saint
“Ramanujacharya” who simply translated the following verse from Mahabharat and gave the world its real face

In Mahabharat,it is described how 'Maharishi Ved Vyasa' gave away his divine vision to Sanjay


Dhritarashtra's charioteer so that he could describe him the events of the upcoming war.

But, even before questions of war could begin, Dhritarashtra asked him to describe how the world looks like from space.

This is how he described the face of the world:

सुदर्शनं प्रवक्ष्यामि द्वीपं तु कुरुनन्दन। परिमण्डलो महाराज द्वीपोऽसौ चक्रसंस्थितः॥
यथा हि पुरुषः पश्येदादर्शे मुखमात्मनः। एवं सुदर्शनद्वीपो दृश्यते चन्द्रमण्डले॥ द्विरंशे पिप्पलस्तत्र द्विरंशे च शशो महान्।

—वेद व्यास, भीष्म पर्व, महाभारत


Meaning:-

हे कुरुनन्दन ! सुदर्शन नामक यह द्वीप चक्र की भाँति गोलाकार स्थित है, जैसे पुरुष दर्पण में अपना मुख देखता है, उसी प्रकार यह द्वीप चन्द्रमण्डल में दिखायी देता है। इसके दो अंशो मे पीपल और दो अंशो मे विशाल शश (खरगोश) दिखायी देता है।


Meaning: "Just like a man sees his face in the mirror, so does the Earth appears in the Universe. In the first part you see leaves of the Peepal Tree, and in the next part you see a Rabbit."

Based on this shloka, Saint Ramanujacharya sketched out the map, but the world laughed
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