She was asked about “Post Exertional Malaise”... 2/n
I held back from commenting overnight to chew it over, but I am still saddened by comments during a presentation I attended yesterday by Prof @trishgreenhalgh & @CIHR_IMHA.
The topic was “LongCovid, Myalgic Encephalomyelitis & More”.
I quote from memory.
1/n
#MECFS #LongCovid
Have you registered for IMHA's next webinar on Long-COVID? Guest speaker Professor Trisha Greenhalgh.
— CIHR-IMHA Community (@CIHR_IMHA) January 12, 2021
When? Tomorrow: *Jan 13th.* 12pm ET
A few spots are left, but going fast!
Registration required: https://t.co/T4PbWNA35Y@KarimKhan_IMHA @CIHR_IRSC @trishgreenhalgh pic.twitter.com/xlWKi4QKF1
She was asked about “Post Exertional Malaise”... 2/n
@Trishgreenhalgh acknowledged the new @NiceComms advice for LongCovid was planned to complement... 3/n
Then it all went wrong.
@TrishGreenhalgh noted the changes to the @NiceComms guidance for ME/CFS, removing support for Graded Exercise Therapy / Cognitive Behavioural Therapy. She noted there is a big debate about this. 4/n
https://t.co/0enH8TFPoe
However Prof Greenhalgh then went off-piste.
5/n
6/n
Aside from ethical issues of naming patients, this is an n=1 case.
7/n
Furthermore, @TrishGreenhalgh failed to mention Prof Jonathan Edwards’ (not on twitter) Expert Testimony.
8/n
His testimony can be found here:
https://t.co/qLhsBJ4Bcu
9/n
I find this ill-befitting of an academic of her standing.
10/n
It puts her view in the field of politics not medicine.
That opens her to political-style criticism, which would be a shame.
11/n
We must play the ball, not the player.
12/n
Perhaps that is why, between 2015-2016 only £5m / year was spent on researching the condition.
Or aproximatly £0.35p per person, per year. Ouch.
https://t.co/TUPEiSCLZq
13/n
It really hurts.
And how ‘aggressive’ were these patients? Is this tweet aggressive? Will I be blocked and blamed?
14/n
I have a fatiguing gut condition and was mis-diagnosed with ME/CFS 4 years ago. I walked 6Km / day.
A specialist ‘undiagnosed’ me as I did not have PEM.
But in 2005, could I have been eligible for a GET study, and might have felt better after exercise.
15/n
She likes to go for walks, and exercises when she can. Had she taken up the offer to participate in a trial, she may have improved too.
16/n
I also experienced gas-lighting from the 20+ docs who told me it was all in my head. Thankfully I now have much better medical support, but many struggle.
17/n
The condition needs research, and that starts with belief, and develops with high-quality, objective science.
END/
I am actually a big supporter of Prof Greenhalgh’s work. Masks are good. So is good patient care.
I have no malicious intent, but it is right to challenge bad pronouncements on this issue.
If you think I have got it wrong, please let me know.
Please challenge misinformation about on ME/CFS, but accept that even great people make mistakes. Forgive.
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If I did thred on finding/acquiring decent raw land would that be something pepo are interested in
— Ovcharka (@ouroboros_outis) January 18, 2021
I think I know a bunch of weird tips/tricks for selection at this point that it might help u guys, lemme know
This is NOT going to be zillow "here is how to google school districts and find walmart" we are not concerned with this malarkey, we are homeschooling and planting victory gardens and having gigantic happy families.
With that said, for my frog and frog-adjacent bros and sisters:
CHOICE SITES:
Zillow is obvious one, but there are many good sites like Billy Land, Classic Country Land, Landwatch, etc. and many of these specialize in owner financing (more on that later.) Do NOT treat these as authoritative sources - trust plat maps and parcel viewers.
TARGET IDENTIFICATION AND EVALUATION:
Okay, everyone knows how to google "raw land in x state" but there are other resources out there, including state Departments of Natural Resources, foreclosure auctions, etc. Finding the land you like is the easy part. Let's do a case study.
I'm going to target using an "off-grid but not" algorithm. This is a good piece in my book - middle of nowhere but still trekkable to civilization.
Note: visible power, power/fiber pedestal, utility corridor, nearby commercial enterprise(s), and utility pole shadows visible.
1/16
When a teaching award is based solely on teaching evals and then only men get it. pic.twitter.com/szIBkCvTe9
— Dr. Marissa Kawehi (@MarissaKawehi) February 12, 2021
When I say "anyone": needless to say, the people who are benefitting from the bias (like me) are the ones who should helping to correct it. Men in math, this is your job! Of course, it should also be dealt with at the institutional level, not just ad hoc.
OK, on to my email:
2/16
"You may have received automated reminders about course evals this fall. I encourage you to fill the evals out. I'd be particularly grateful for written feedback about what worked for you in the class, what was difficult, & how you ultimately spent your time for this class.
3/16
However, I don't feel comfortable just sending you an email saying: "please take the time to evaluate me". I do think student evaluations of teachers can be valuable: I have made changes to my teaching style as a direct result of comments from student teaching evaluations.
4/16
But teaching evaluations have a weakness: they are not an unbiased estimator of teaching quality. There is strong evidence that teaching evals tend to favour men over women, and that teaching evals tend to favour white instructors over non-white instructors.
5/16
(thread)
I think most of us are over here waiting to see what @jbcarmody has to say about the latest NBOME email pic.twitter.com/bVWkS23V7z
— Jake Berg (@jberg521) January 28, 2021
Look, even before the Step 2 CS cancellation, my DMs and email were flooded with messages from osteopathic medical students who are fed up with the NBOME.
There is *real* anger toward this organization. Honestly, more than I even heard about from MD students and the NBME.
The question is, will that sentiment translate into action?
Amorphous anger on social media is easy to ignore. But if that anger gets channeled into organized efforts to facilitate change, then improvements are possible.
This much should be clear: begging the NBOME to reconsider their Level 2-PE exam is a waste of your time.
Best case scenario, you’ll get another “town hall” meeting, a handful of platitudes, and some thoughtful beard stroking before being told that they’re keeping the exam.
Instead of complaining to the NBOME, here are a few things that are more likely to bring about real change.
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