Authors Irwin Gill

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THREAD: I hope this mistake can be used as an opportunity to learn why this kind of language is bad.

The Minister isn't the only person to say things like this- I've even heard parents of kids with autism refer to other children as "normal" & have had to rearrange my face. (1/n)


The hard thing for those of us working in/ living with disability is that this is a mistake we'd NEVER make.

For others (who don't live and breathe disability), saying "normal children" is probably a slip of the tongue- not a betrayal of them secretly being awful people. (2/n)

Given her portfolio this is a bad gaffe for the Minister which has upset people. Rather than piling on, it would be better to use this as a rare opportunity for other people to learn why language matters so deeply in disability and why this kind of thing is so wounding. (3/n)

Children with disabilities or special educational needs have the same rights to education and participation as everyone else. The support they need to achieve this is not "extra help" it's the bare minimum responsibility of State to allow them participate in their own lives(4/n)

By separating children out based on disability and not guaranteeing their rights, we state that their rights only apply when it's convenient for us to meet their needs. Whether we like it or not, this is what we say when we abide appallingly underfunded services. (5/n)
A thread on the Assessment of Need: the statutory process by which children whose parents have concerns about potential disability can be assessed.

The process has recently been changed by the HSE in a manner that is frankly appalling.

Explanation: (1/n)


Parents might apply for AoN for a child due to concerns about development- in my clinic, the commonest reason is queried autism.

Previously, the AoN involved a team (usually physio, OT, SLT, psychology) assessing a child to get insight into the nature of their difficulties (2/n)

The team conducted a series of assessments, usually taking several hours each, and produced a report giving a detailed analysis of how a child is doing, what the causes of their difficulties might be, suggesting a diagnosis if appropriate, and giving advice on next steps (3/n)

Based on this, a child might be entitled to additional support in the classroom or financial supports. Medical investigations for individual diagnoses could also be arranged.

Function is more important than diagnosis, but in our system diagnoses get you support.

(4/n)

Legally, the AoN must be completed within 6 months of referral.

In many parts of the country, including Dublin, this almost never happens.

91% of children do not get their assessments on time.