THREAD: Women and "Unexplained" Diseases

It's interesting that even a condition as common as #Migraine is still not well understood.

Significant overlap with many other conditions mostly impacting women that are also "not well understood" is present.

https://t.co/EhrnxfItsm https://t.co/R7QUKrZvhR

2/ As a women’s health clinician & #COVID researcher I know ME/CFS, #LongCOVID & most autoimmune diseases disproportionately impact women after puberty. Female preponderance has likely contributed to the historical neglect of funding & subsequent lack of interest in studying them
3/ Paradoxically, the ongoing dismissal of many of women’s symptoms and abuse by the medical system is a direct result of our lack of understanding & ongoing LACK of funding.
cc: @jenbrea @ahandvanish @AthenaAkrami @Dr2NisreenAlwan @MBVanElzakker
https://t.co/ITrLBkc3uE
4/ This pattern of ignorance/lack of understanding and dismissal, further perpetuates the trauma women suffering from chronic illness must endure. @ahandvanish @AthenaAkrami @jenbrea @RanaAwdish @VirusesImmunity @angie_rasmussen

Example stats ME/CFS:
https://t.co/GKQqqtWTI7
5/ Or Functional Neurologic Disorder (FND) aka Conversion Disorder, Hysteria, or Psychogenic Non-Epileptic Seizures (PNES).

Majority of patients with PNES are women, outnumbering men by a ratio of 3:1. Female sex preponderance occurs after puberty & usually before the age of 55
6/ You don't have to look far. Patient's are SMART. Many patients are also clinicians and scientists.

Lack of data does not equal lack of EXISTENCE of a problem, it equals lack of UNDERSTANDING of the problem.

And this problem is immense.
https://t.co/TnF2j4dKs3
7/ The intersection of sex hormones and immunobiology has never been more important for us to understand.

My optimistic hope is that the enormous amounts of funding for #COVID19 open doors to understanding pathophysiology of previously neglected diseases particularly in women.
8/ Paternalism, sexism & racism are baked into medicine, medical training, and a broken healthcare system.

But our scientific ignorance should not be wielded to blame & further abuse patients.

Our lack of understanding is not their failure but ours.

https://t.co/LwN8qc0Q4a
9/ And while we're at it, could we just abandon certain medical terms like: "incompetent cervix" and "irritable uterus"...

There are more specific, more scientific, and less offensive terminology we can use for women's bodies.

@VirusesImmunity @angie_rasmussen @DocElovitz
10/ @threadreaderapp please unroll

To read more of my Threads, please check out: https://t.co/UMdZvE2tDj

More from Health

No-regret #hydrogen:
Charting early steps for H₂ infrastructure in Europe.

👉Summary of conclusions of a new study by @AgoraEW @AFRY_global @Ma_Deutsch @gnievchenko (1/17)
https://t.co/YA50FA57Em


The idea behind this study is that future hydrogen demand is highly uncertain and we don’t want to spend tens of billions of euros to repurpose a network which won’t be needed. For instance, hydrogen in ground transport is a hotly debated topic
https://t.co/RlnqDYVzpr (2/17)

Similar things can be said about heat. 40% of today’s industrial natural gas use in the EU goes to heat below 100°C and therefore is within range of electric heat pumps – whose performance factors far exceed 100%. (3/17)


Even for higher temperatures, a range of power-to-heat (PtH) options can be more energy-efficient than hydrogen and should be considered first. Available PtH technologies can cover all temperature levels needed in industrial production (e.g. electric arc furnace: 3500°C). (4/17)


In our view, hydrogen use for feedstock and chemical reactions is the only inescapable source of industrial hydrogen demand in Europe that does not lend itself to electrification. Examples include ammonia, steel, and petrochemical industries. (5/17)
Before we get too far into 2021, I thought I’d write a thread recapping some of the research that came out of my lab in 2020. Most of this work was led by my talented team of graduate students, Kerrianne Morrison, @kmdebrabander, and @DesiRJones.

Back in January, a news story was published about Kerrianne’s study showing improved social interaction outcomes for autistic adults when paired with another autistic partner.

A detailed thread about the study and a link to the paper can be found here (feel free to DM me your email address if you’d like a copy of the full paper for this study or any of our studies):


Another paper published early in 2020 (it appeared a few months earlier online) showed that traditional standalone tasks of social cognition are less predictive of functional and social skills among autistic adults than commonly assumed in autism research.


Next, @kmdebrabander led and published an innovative study about how well autistic and non-autistic adults can predict their own cognitive and social cognitive performance.
🚨Important changes to lockdown/self-isolation regulations from 5pm

The Health Protection (Coronavirus, Restrictions) (All Tiers and Self-Isolation) (England) (Amendment) Regulations 2021

£800 'house party' FPN & police can now access track & trace data

https://t.co/k9XCpVsXhC


“Large gathering offence”

As trailed by Home Secretary last week there is now a fixed penalty notice of £800 (or £400 if you pay within 14 days) for participating in an gathering of over 15 people in a private residence


Fixed Penalty Notices double for each subsequent “large gathering offence” up to £6,400

Compare:
- Ordinary fixed penalty notice is £200 or £100 if paid in 14 days
- Holding or being involved in the holding of a gathering of over 30 people is £10,000


Second big change:

Since September has been a legal requirement to sell-isolate if you test positive/notified by Track & Trace of exposure to someone else who tested positive

Police can now be given access to NHS Track & Trace data if for the purpose of enforcement/prosecution


This will make it easier for police to enforce people breaking self-isolation rules. Currently there has been practically no enforcement.

Data says only a small proportion of people meant to be self-isolating are fully doing so.

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