Me: Made a thread about how people don't understand hyperacusis and give advice that obviously I've already tried.

This person only a few tweets into the thread:

I only tweeted this because, like it or not, this is the general population's reaction to me talking about hyperacusis.

Similar replies happened when there was the whole "not clapping" article regarding Cambridge.

They're so quick to label disabilities as not real disabilities.
It's important to remember this when people may ask why we've never talked about this before, or why it's not talked about a lot.

Most people don't talk about their hyperacusis because if they do, people respond like this. So most of the time, honestly it's easier to say nothing
Yes I am petty enough to add screenshots of this toxicity to this thread:
Asking for accessibility is "pathetic." /s : )
This isn't in the same tier as the others but I've gotten this multiple times & it's NOT true that there's a common feature in headsets that provides a max volume limiter. If they do exist, they're not common and they are very expensive ($150 or more). I have a "good headset."
1. Hyperacusis is -sorely- underdiagnosed for sure, especially among autistic people.

2. Having this feature helps many more people - people with PTSD, misophonia, HoH, etc.

3. Abled people would use this to reduce awful sounds.

3. People with "rare" disabilities still matter.
[alt-text: Your condition affects 1 in every 50,000 people. With a hit game of 1 million players, the lack of volume sliders will affect 20 people. I can understand why the developers had not considered your condition when making the game, and the fix may never be priority sadly]
Lol 😂😂 I think maybe I should start a counter of how many times I'm going to get this one? I've already gotten it at least twice.

More from Health

Some thoughts on this: Firstly, it might be personal preference, but I am not keen on this kind of campaign as I feel like it trivialises cancer. Sometimes the serious message gets lost because people are sharing pics of cats or whatever and the important context is gone.


More importantly, the statistic being used in the campaign is misleading. It says 57% of women put off cervical screening if they can't get waxed. But on further investigation, that's not accurate.

The page here goes on to say "57% of women who regularly have their pubic hair professionally removed would put off attending their cervical screening appointment if they hadn’t been able to visit a beauty salon."

So the 57% represents a concern not across the whole population of women, but only those who regularly get waxed. So how big of an issue is this across the whole population? And what else is stopping people getting smears?

I think campaigns for cancer screening are really tricky because there is so much nuance that often doesn't fit into a catchy headline or hashtag. It's certainly not easy and is part of a bigger conversation.

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