MYTH OF FIBROMYALGIA?
Idea that Fibromyalgia is a myth persists. In 2009, I published (“Practical Pain Management”) announcement of cause. I sent Dr. Tennant, editor, a manuscripts entitled “Fibromyalgia-Finally The Cause”.

Dr. Tennant chose to change title to, “Sacroiliac Joint Disorder”; I was a country doctor without academic credentials. The article continues on-line. Gratefully, Dr. Tennant did not change the article content. He sent me a note, something like, “you will help many”.

I suspect the world medical community continues of one mind that the cause of Fibromyalgia is unknown, & that many doctors continue to question authenticity of such a disorder. Naysayers are simply ignorant.

At the 10th Interdisciplinary World Congress on Low Back & Pelvic Pain, Antwerp October 2019 (on line), I presented eight papers on my study of 50 people with Fibromyalgia. The lead paper announced the multifactorial causes of Fibromyalgia.

A sine qua non of Fibromyalgia is both lower & upper back pain. Non-refreshing sleep, daytime fatigue, depression, & cognitive disarray are common and all are symptoms resulting from non-restorative sleep; aroused by pain while trying to sleep.

#Adulterants and #Allergies

Not all experts are doctors in the field. Most expertise comes from experience.

Of Food allergies, cosmetics, cancer, eczema, ADHD, hyper, flatulence, tattoos, cross reactions n more

#importantthread

Do you know readymade store bought packets need not disclose an additive if it's less than 2% in India?

For ex store-bought packet of wheat flour adds soya powder. Why? Mainly to preserve the whiteness they say. Why is soya bad? Most people with allergies react to soya terribly. Maida has bleach n so does other refined flour

A close friend's kid took a famous brand of noodles n then he got itching...on testing the masala they found peanut powder less than 2%. Peanut is a top allergen. Same with oils n food from bakeries n other brands u don't know half the additives added.

They add sodium benzoate to preserve organic food n drinks by top herbal brands too. Benzoate reacts readily n highly n causes cross reactions n allergies to already allergic people

Went to pick up 2 prescriptions today. I am doubly insured, both through my job (BCBS PPO) and my husband’s job (HMO). Total for a 1-month supply was $1812.75. Neither insurance covered a dime, so I went without. Just letting you know it happens to MDs, too, and it’s shameful. 1/

These were FDA-approved prescriptions, both prescribed for “on-label “ use by my PCP for criteria which I meet. They weren’t written by me, my husband or a friend. But 2 insurance companies get to decide whether or not my condition is worth treating, not my doctor. 2/

So, it’s a lottery. Why should the insurance executives get to decide who and what is worth treating? Do I waste my doctor’s time appealing when he is already burnt out by spending 18 minutes clicking buttons for the 2 minutes of face time he got with me? His time is valuable. 3/

And I feel bad knowing he skips lunch or misses dinner w/ his family to do these things and makes less money than he did 25 yrs ago when he started out. So I will wait. And play the game of trying to change insurance at open enrollment time to find one that covers these meds. 4/

Insurance cards are often not worth the plastic they are printed on. There is no generic for these. No GoodRx. And I will sleep tonight and be alive in the morning. But the person like me who couldn’t afford their insulin or they’re asthma medication might not be so lucky. /X